Advice From Sean and Lani: Participate, Expect the Unexpected, and Practice Self-Care

Sean and Lani are the parents to Nina, an incredible five-year-old heart warrior with a single ventricle heart, hypoplastic right heart syndrome (HRHS), pulmonary atresia, tricuspid atresia, and MAPCAs. Nina has undergone the Norwood procedure/BT shunt at 8 days old, unifocalization for MAPCAs and shunt upsize at 6 months, Glenn shunt at 21 months, and Fontan at 4.5 years.

Watch for our next post with Nina!

2 thoughts on “Advice From Sean and Lani: Participate, Expect the Unexpected, and Practice Self-Care

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